This short documentary titled Good Morning Peyton captures the daily struggles of living with rare disease. Produced by Washington Square Films and directed by Alison Klayman for the National Organization for Rare Disorders (NORD), the documentary introduces us to Peyton Madden who has Xeroderma Pigmentosum (XP), an extremely rare and life-threatening disease that makes him allergic to sunlight. He is one of 30 million Americans living with a rare disease.
Madden’s situation led to a partnership between the town of El Dorado, Kansas, and NORD to flip its clocks from “PM to AM” and give the lad with XP the “day” of his dreams under the safety of the moonlight.
Peyton’s story is part of NORD’s “Do Your Share” (#DoYourShare) campaign, which sheds light on the need for more discussion about rare diseases and for more support from communities.
Read the original article HERE.